After successful publication of the “Nedaye Nader (Voice of Rare) ” specialized magazine with the rare diseases as its main theme the Foundation, in line with its social mandate in promoting the health quality in different social communities, attempted to publish the “Safire Salamat ) Messenger of Health)” monthly magazine.
Low prevalence of rare diseases has caused very limited studies done in this area. On the other hand the hereditary nature of these diseases has added more difficulties and complexity lowering the pace for identification of their causes and roots and accordingly their diagnosis and treatment.
The Coeliac Society is considered as the first national, scientific and supportive society that has been established in Iran (2001) belonging to the Coeliac affected patients. This society is the first supportive and scientific NGO at the national level in Iran with its main office in Isfahan. It is worth mentioning that thank to the untiring efforts by a number of professors, researchers and charity donors this society was officially registered with the concerned bodies in 2004.