The first anniversary of Dr. Ali Davoudian, the father of Iranian rare patients coincides with the demise of Imam Reza in Aban 16th ( 30th October) in his birthplace (Bahnamir) with the presence of the country and provincial authorities; including Mr Govahi, representative of the supreme leader, Sardar Nanvakenari, chairman of the national security committee.
11 Rare Diseases Registered at RADOIR
RADOIR NEWS – Eleven rare diseases approved at RADOIR to complete its directory in 2018
11 rare diseases were approved and added to the directory of 218 rare diseases at the 8th RADOIR’s medical committee.
SABNA- Registry system for Iranian Rare Patients
Description of the project
Healthcare is an important part of human life. Providing the best medical facilities for people with rare diseases is an integral part of today’s society. Thus, RADOIR designed an automatic system for Patients’ registry. The main goal is to establish an integrated system without paper works and with access to all sections; medical services, research and development, pharmaceutical, associations and other affiliated centers to provide better services for rare patients.
The Discussion Meeting between RADOIR and Research Center for RP
A joint meeting between Rare Diseases Foundation of Iran, Optical research center of Medical Science of Shahid Beheshti and the Institute for supporting patients with RP held on Thursday 24th Oct. 2018 in regard with RP patients’ registration in SABNA.
RADOIR at ICORD on 20th -21st Sep. 2018, Sweden- Stockholm
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals. The mission of ICORD is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness. One of the main activities of ICORD is the organisation of the ICORD annual meetings, which have been successfully arranged ten times all over the world.
MOU signed between RADOIR and RareConnect
RADOIR NEWS _ A Memorandum of Understanding has countersigned by RADOIR and RareConnect during the 27th Workshop for European Round Table of Companies.
RADOIR at The 2nd International Brain Mapping Symposium
The 2nd International Brain Mapping Symposium held in Tehran, 10-11 October 2018
RADOIR NEWS_ National Brain Mapping Laboratory held the 2nd International Brain Mapping Updates Symposium in Tehran with presence of different national and international scientists. Dr. Hamidreza Edraki, Managing Director of RADOIR and Dr. Mehdi Norouzi, RADOIR’s Deputy of Research attended the event, accordingly.
Dr. M. Imaniyeh Appointed As RADOIR Ambassador of Kindness
RADOIR NEWS_ Dr. Maryam Imaniyeh, Dr. MohamadJavad Zarif’s wife, appointed as RADOIR ambassador of kindness.
A meeting session to call for rare patient’s support between Rare Diseases Foundation of Iran and Diplomatic Ladies Association was held on Wednesday 10th October at RADOIR.
MOU Signed Between The Short Stature Society & RADOIR
A memorandum of understanding signed by RADOIR and the Iranian short stature society on the provision of the clinical, para clinical and laboratory services to the association members.
RADOIR at 1st Scientific Panel of National Brain Mapping Laboratory (NBML)
The first panel of NBML was held on Friday 28th September 2018 presenting innovative, functional imaging and screening methods about early diagnosis of the rare diseases.