Open Call for NGOs to apply for Consultative Status with the United Nations (Deadline: 1 June 2018)
NGOs interested in applying for ECOSOC consultative status should submit their application and required documents on or before the deadline of 1 June 2018. The following link provides background information, the benefits of consultative status and instructions for how to apply: https://bit.ly/2ozYpVw
15 Apr2018
Rare Diseases International General Assembly & Annual Meeting
The 2018 RDI General Assembly (open to RDI members only) and Annual Meeting (open to everyone interested in learning more about international rare disease initiatives) will also take place on 10 May in conjunction with ECRD.
Register to attend
11 Mar2018
Rare Diseases Foundation of Iran held Genodermatoses symposium
On the occasion of Rare Disease Day
Rare Diseases Foundation of Iran held Genodermatoses symposium
The symposium of Rare Condition of Skin Disease (Genodermatoses) held by Rare Diseases Foundation of Iran in collaboration with Dermatology and Stem Cell Research Center and Tehran University of Medical Sciences on February, 26, 2018 in Tehran.
11 Mar2018
Rare Metabolic and Genetic Diseases symposium
Rare Diseases Foundation of Iran held a Rare Metabolic and Genetic Diseases symposium for one day on December 20, 2018, in collaboration with Tehran University of Medical Sciences in Tehran.
10 Feb2018
9th International Congress on the Occasion of Rare Diseases Day
Partnership of Rare Disease Patients is the focus of Rare Disease Day
Managing Director of Rare Diseases Foundation of Iran: This year the conference with slogan of “Partnership of Rare Disease Patients is the key factor for productive research on Rare Diseases” is a new chapter in collaborating with Rare Disease Patients to use their experiences in the research field.
05 Dec2017