The first session for developing strategic plan for rare diseases of Iran was held at TUMS headquarters office on last Sunday 16th June, 2019 with the presence of Dr. M.A. Sahraiean the scientific research deputy of TUMS, , Dr. Mahdi Norouzi, the scientific research deputy of RADOIR, Dr. Shamshiri, Epidemologist, Dr. Shadab Salehpour, pediatric endocrinologist, Prof. D. Farhoud, the father of genetic science of Iranand Dr. Siyamak Abdi, neurologist and Dr. H. R. Edraki, RADOIR managing director who is the core member to develop the national strategic plan for rare diseases in Iran.
RADOIR Membership at International Society for Neonatal Screening (ISNS)
Rare Diseases Foundation of Iran was approved as associate member at the International Society for Neonatal Screening
RADOIR Membership at Cancer Epigenetics Society (CES)
RADOIR’s Authorities In An Official Meeting With The Minister of Health
RADOIR’s board of directors had a meeting session with Dr. Namaki, the minister of health on Monday April 15th, 2019 at MOH – Iran to present RADOIR’s 10 year activity report .
Spring Greeting Session With Rare Diseases Societies at RADOIR
Rare Diseases Societies joined greeting session at Rare Diseases Foundation of Iran for the Iranian new year and met with the chairman and the managing director of RADOIR
National Strategic Plan for Rare Diseases of Iran Establishment Confirmed
The Iranian minister of health authorized Tehran Medical University (TUMS) to establish the national strategic plan for rare diseases in cooperation with Rare Diseases Foundation of Iran
Discovering the First Common Risk Genes for Autism
Researchers at Danish Project iPSYCH & the Broad Institute in USA have found a common genetic risk for autism. The discovery means the determination of genes by separating the diagnosis groups and making more exact diagnoses will be accessible in the future.