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In order to establish R & D collaborative committee on the scientific research prioritizations for the rare patients’ needs, a meeting session was held together with RADOIR & TUMS authorities.

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Rare Diseases Foundation of Iran and ROYAN Institute held a meeting session on the means of scientific research collaboration in the field of rare diseases and genetic disorders on Wednesday 2nd Jan, 2019.

Health socialization & social responsibility on health care system is the main topic of discussions during Dr.Hashemi’s ministership which was completely changed through emphasizing on NGOs’ impressive role, accordingly.

The 7th Scientific Conference of Hypothesis Diseases, Growth Hormone Disorder in children and Adults was held on 21 December 2018 by the scientific secretary, Dr. Mohammad Khamseh and the executive secretory, Dr. Mojtaba Malek from Endocrine and Metabolism Institute of Iran Medical Science University at Parsian Evin hotel, Kooh-e-Noor hall.

The 8th International Rare Disease Day conference on February 26 with the slogan “Rare Disorders Without Borders,” aims to raise awareness on rare diseases across the world, and the medical and social challenges in the field.

Annually, more than 30,000 babies with congenital disorders are born in the country while in at least 20,000 cases the problem can be prevented or solved through premarital and prenatal genetic counseling, said Dr Saeed Reza Ghaffari, genetic expert and a board member of Avicenna Infertility Research and Treatment Center.

As a member of the EURORDIS delegation, I was invited to participate in the Rare Disease Foundation of Iran’s 8th International Congress on the occasion of Rare Disease Day.