آقای افتخاری ملکی عزیز

Dear Mr Eftekhari Maleki

We are pleased to inform you that your application for associate membership of EURORDIS was officially approved by the Board of Officers on September 19th, 2016.

We would like to welcome you within EURORDIS.  We strongly believe that bringing together all patient associations will provide people with rare diseases with a strong and unique voice. With over 700 direct member organisations, EURORDIS is recognised and listened to as the European organisation specialised in the needs of patients with rare diseases.

As a member association, you will receive key information on a regular basis.

We invite you to subscribe to the EURORDIS eNews, available in seven languages. To learn more about the eNews and to manage your subscription visit: http://www.eurordis.org/enews

You will automatically receive the monthly EURORDIS Member News.

If you would like to announce your events and meetings on the EURORDIS website, Member News & announcements,  please let me know by e-mail.

Please find attached the EURORDIS member logo that you are invited to use on your communication material and website.

Once again, we welcome you to EURORDIS . Please do not hesitate to contact us if you need any further information

Sincerely yours

Anja Helm

Senior Manager of relations with Patient Organisations