International Day of rare diseases 2011

• A Tribute to RARE DISEASE DAY
• February 28^th 2011
• Venue: IRIB International Conference Center (IICC)

Objectives & Approaches: 

• Unveiling Rare Diseases Atlas
• Unveiling the Rare Voice (Neday-e-Nader) Journal
• Signing collaboration MOU with ECO on exchanging global experiences
• Introduction to the Comprehensive map on development of rare diseases in four phases within a ten year period
• Issuance announcement of Nader Health Card for 15,000 rare patients countrywide
• Introduction to implementation agenda of the rare diseases monitoring and screening programs.