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Rare diseases patients without borderpe

TOP NEWS

We are not alone but we are rare

The 4TH volume of the Atlas of rare diseases of Iran has been published

The 4TH volume of the Atlas of rare diseases of Iran has been published

Participating at Eurordis open Academy as active member of Eurordis

Participating at Eurordis open Academy as active member of Eurordis

BECOMBING MEMBER AT INTERNATIONAL POMPE ASSOCIATIN

What is a Rare Disease?

Europe Approves Avapritinib for Rare Mast Cell Disease

Europe Approves Avapritinib for Rare Mast Cell Disease

UB research identifies key mechanism in infantile cystinosis

Rare Disease Day
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