The providing and editing of the national rare diseases document is one of the most vital activities of the Rare Diseases Foundation, and in this regard, the Rare Diseases Foundation of Iran, with a lot of endeavor and follow-up, and with the participation and cooperation of the professors and expertise of the Foundation and other universities of medical sciences, prepared and compiled the National Document of Rare Diseases of Iran, which after being approved by the Secretariat of the Supreme Council of Health and Food Safety and the cooperation and collaboration of the honorable officials of that ministry and other related institutions, was finally approved by the honorable president and announced. Undoubtedly, the declaration of this document can be a very huge and effective step in determining the duties of the institutions and beneficiaries related to these patients, providing services to rare patients and their families, and solving the problems of these patient respectfully
The honor of Rare Diseases Foundation of Iran
The present book, Normal Findings in MRI and CT, has been collected and translated by Dr. HamidReza Edraki, the assistant professor and member of faculty in Shahid Beheshti Medical of Science University and also the Managing Director of Rare Diseases Foundation of Iran. It is published by Shahid Beheshti Medical of Science University. The book compares normal and abnormal findings in MRI and Ct scan. It is including 230 pages with 7 sections consist of MRI and CT scan from head, neck, abdomen, pelvis, spin, joint, vessels and etc. It is one of the university exam references for MA and PhD. The book has been ranked as the top 10 books of the year for the International Book Fair.The English version of the book is available, here.
Low prevalence of rare diseases has caused very limited studies done in this area. On the other hand the hereditary nature of these diseases has added more difficulties and complexity lowering the pace for identification of their causes and roots and accordingly their diagnosis and treatment.