The beginning of the preparation for joining Rare Diseases Foundation of Iran into the world community of Rare Disease Patients
Finally, a dream of late Dr. Davoudian, the Founder and Managing Director of Rare Diseases Foundation of Iran comes true in order to improve the quality of life for patients with rare diseases and their families. Mr. Denis Costello, Web Communications Senior Manager & RareConnect Leader at Eurordis ( Rare Diseases Europe) traveled to Tehran on November 3rd, 2017 for training technical experts from the foundation to launch the Rare Connect for Iranian patients in the very near future.
