At the 29th session of medical committee was held at the Rare Diseases Foundation of Iran on Wednesday Sep. 22 2021, about 156 rare diseases were pre-diagnosed of which 10 new types of rare diseases
RADOIR News- The newly registered rare diseases at RADOIR are as : GM 1, Sezary Syndrome, Prader -Willi Syndrome, Testicular Feminization Syndrome, Ashalazy, Argininosuccinic Aciduria de hydrogenized, Kikuchi Adenopathy, Allan Herndon Dudley Syndrome, Aplastic Anemia and a chromosomal disorder approved by RADOIR’s Medical Committee and added to its Patients Registry System (SABNA).
Attendees at the 29th medical committee were: Prof. Dariush Farhud, Father of Genetics in Iran, Dr. Hamid Reza Edraki, Managing Director at RADOIR, Dr. Shadab Salehpour, Pediatrics Metablolism Subspecialist, Dr. Mohammad Haghshenas, Internal Diseases Specialist, Dr. Saiedeh Mehdipour, Deputy Treatment at RADOIR, Dr. Yaghoubpour, Endocronologist and Parinaz Shahvand , Deputy International Affairs at RADOIR.