RADOIR Public Relations- It was approved that the condition of rare diseases patients should be determined by high prevalence, disability factor, affordability and updated methods for treatments.
This meeting was held on Wednesday on 23rd of May, 2018 with the presence of RADOIR scientific committee members as : Professor Farhoud , Medical Genetics Specialist , Dr. Mehdi Norouzi, Genetics Specialist , Dr. Mehrdad Izadi, Children Surgery Specialist , Dr.Hamid Ariyaee Tabar, Ophthalmologist & Head of the R.P Association in the western region , Dr. Hamidreza Edraki Managing Director of RADOIR , Dr. Hossein Najmi , Psychiatrist & Psychologist at RADOIR and Dr.Mehdipoor , Director of RADOIR Clinic.
During this meeting ,it was also agreed that before issuing a rare health card , the dossier of patients referred to a rare specialized clinic to be revised by an assistant aide and then referred to the relevant specialists for further diagnosis and treatment, accordingly.