He lived normally and he didn’t have any problems till the age of 5. One day when he was playing in the yard in his grandmother’s house he fainted suddenly. His mother cuddled him and kept calling his name “ Mohammad” and that was the beginning of their new life.
There is a boy lives in the vicinity of Karaj, he is not waiting to be off from school because of polluted air since he slept on his bed with an oxygen tube and his eyes just open by mother’s voice.
The mother’s name is Zahra and she welcomed us in their small house. Their house had a room where designed for Mohammad. She gave us warm and friendly reception then talked bout Mohammad disease and her patience and making efforts to keep him alive.
“ he was healthy like other children until age 4, one day when he was playing he lost his balance and fell down on the ground, at first I thought he fainted since he was exhausted, but when his eyes had changed I said he is dead and shouted continually “My son has gone” when my father came home and saw Mohammad he said that he had a seizure.
Zahra and her family were hopeful and took him to the hospital. After hospitalizing him and initial examinations, the doctor said he had a seizure and he didn’t have a serious problem.
Zahra explained that previously he had a cold and he consumed Diphenhydramine and the other drug simultaneously and it caused the underlying disease becomes active.
After one week from his seizure although, he was a bit lethargic he was like an ordinary child. Next week, he had a seizure again and this time it was associated with fever. A doctor diagnosed his disease as Autism and they started his treatment but later it was detected that he is not suffering from Autism.
Some time has passed since his last seizure, he didn’t have any problems and it was thought to be improving but it wasn’t.
After a while, lack of balance increased in Mohammad and he lost his walking power. His doctor changed his drugs as he observed this changes, but before using the new drug again he had a seizure and taken to the hospital.
After hospitalizing for hours, he got well and the doctor permitted to go home, while his mother repeated continually that he had a seizure without any especial reasons.
Mohammad discharged from hospital and returned home, it was 11:00 o’clock at night, he had a seizure again and taken to the hospital, the doctor didn’t let him go home and hospitalized him for taking more tests.
His father had consulted with some doctors and the doctors sent his data to Germany and French for more investigations Then they announced that he is afflicted to “ cerebellar Atrophy”.
At the same time, the Iranian doctor said: ” he is affected by cerebellar Atrophy and just can live for two months”.
1391 new year holidays was the worst time for Mohammad, his right lung got disabled, he had just one lung for breathing and his consciousness level was getting less day-to-day.
Now he is 10 years old, his consciousness level is 4 and whenever his mother calls his name seems he comes back to life again.
Zahra was a good kind of a devoted mother, she kept smiling when she was talking about her son. Although the expenses of the treatment are too high for them, she didn’t complain. She said heart fully: “I know Mohammad never get cured. but I let the doctors test him to diagnose the reason of his disease in order to prevent other children from affecting.