The head of transplant and treatment center of MOH-Iran announced,” There is possibility for accurate diagnosis of MPS patients population to receive further support from the government.”
“As you are aware about the treatment of MPS patients , the cost and expenses are pretty high. The patients should receive their pharmaceuticals on and on to keep on living and we are responsible to take the necessary actions on the rare diseases prevention.”, Dr. Shadnoush, the head of Transplant & Treatment Center of MOH-Iran emphasized.
He added, “ During the recent years, in order to perform MPS patients diagnosis and laboratory tests, the genetic samples were sent to abroad. But last year, we could be able to do the same in Iran with the help of our genetic scientists and specialists. We receive such services through the pharmaceutical importation companies.”
He continued,” We have identified the patients transferring the defective genes and perform the required tests during pregnancy to make sure of the fetus health . Even when we try to control the prevention in neonatal.”