Dr. Ali Davoudian accompanied by scientific representatives from Rare Diseases Foundation of Iran participated at 25th Eurordis Round Table Companies workshop which had held on 26th of September 2017, in Barcelona.
Dr. Ali Davoudian, Managing Director, Dr. Farhang Tohidi, head of pharmaceutical department and Eng. Alireza Tavakoli from medical equipment sector of Rare Diseases Foundation of Iran Attended the event.
At the beginning of the meeting, Mr. Yann Le Cam, Chief Executive Officer at Eurordis, made a speech. He praised Dr. Ali Davoudian ‘s effort, persistent cooperation and also his active and committed presence in every Eurordis meetings while welcoming the invitees.
He also advised all stakeholders and audience to start a serious cooperation with Rare Diseases Foundation of Iran. At the meeting, the state of the art of ERNs(European Reference Network) was discussed by a representative from European Commission.
In the following, Mr. Matt Bolz-Johnson, Healthcare and Research Director at Eurordis from Germany negotiated what ERNs can bring to therapeutic development in Rare Diseases.
Besides, two case studies were introduced by Dr. Céline Plisson, Medical Director of Orphan Europe, from France.
Afternoon sessions focused on the potential for collaboration. Key questions around disease understanding and data generation, sustainability and exchange of expertise between healthcare companies and ERNs were discussed.
At the end, the summing up was done by Mr. Yann Le Cam, CEO at Eurordis, Dr. Maurizio Scarpa, ERN Chairman, and Dr. Diego Ardigo, project leader of advanced therapy medicinal products (ATMP).