Dr. Ali Davoudian, the Managing Director of Rare Diseases Foundation of Iran passed away on the eve of the ninth year of the foundation’s activity.
The late Dr. Davoudian passed away because of heart failure at the age of 58. Dr. Davoudian established the Rare Diseases Foundation of Iran as a national and international institution in 1388 (2009).
Due to the lack of any supporting organization dedicated to Rare Diseases Patients, Rare Diseases Foundation of Iran was formed by Dr. Davoudian’s effort and he had managed the foundation as a non-profit organization during these years.
Dr. Davoudian once met a child with EB in 1386 and it caused he decide to establish the Rare Diseases Foundation of Iran.
He said: “I saw a child affected by EB in 1386 who had very severe skin wounds when I saw the pain he and his family was tolerating, I wrote a novel with the title of “the Birth of a Butterfly” to describe his hardship. This was my most important motivation to enter the medical arena and support these patients.”
Rare Diseases Foundation of Iran, the member of Rare Diseases Europe (EURORDIS) could receive the special consultative status for Economic and Social Council of the United Nations( ECOSOC) last year, it supports more than 50000 patients with Rare Diseases and provides them free of charge services in Nader clinic and Parsian Imaging and medical center.
Supporting 18 Rare Disease societies and 10 Chronic Disease associations were among the other activities of the late Davoudian at the Rare Diseases Foundation of Iran. Davoudian who was planning to expand the Foundation’s activities across the country established the Foundation’s offices in various provinces, including Golestan, Fars, Kermanshah, Mazandaran, and West Azerbaijan.
