Dr. Ali Davoudian said:
Our aim is protecting all the rare disease patients regardless of geographical borders.
25 January 2017, Paris – Patients around the world will mark the tenth annual Rare Disease Day on Tuesday 28 February. In the build up to Rare Disease Day 2017, the official video launches today.
He lived normally and he didn’t have any problems till the age of 5. One day when he was playing in the yard in his grandmother’s house he fainted suddenly. His mother cuddled him and kept calling his name “ Mohammad” and that was the beginning of their new life.
EURORDIS-Rare Diseases Europe has recently signed an agreement with the Rare Disease Foundation of Iran, a non-profit and non-governmental institution that provides services for rare disease patients and their community in Iran.
Research lesson added to the lessons for students who are studying at Dana school, affiliated to Rare Diseases Foundation of Iran.
General manager of Rare Diseases Foundation of Iran has traveled to Spain to remove obstacles on the way of delivering orphan drugs to Iran. “Vegal Farmaceutica” is a pharmaceutical laboratory that began operations in 1994. They are nowadays present in most foreign markets.
Rare Diseases Asia conference 2016, is held for 3 days from 27th of Aban (17th November) in Malaysia.
All rare diseases organizations from Asia and beyond participate in this event and Mr. Mehdi Mahkam attends as Rare Diseases Foundation of Iran representative.