New York, 11 November 2016 – The NGO Committee for Rare Diseases launches today at the United Nations headquarters in New York.
19 Nov2016
Membership of EURORDIS and RDI
After Eurordis representatives visit to Iran and having several meetings with Rare Diseases Foundation of Iran in July 2016, a memorandum of understanding aims to more cooperation on improving life of patients with Rare Diseases signed between EURORDIS and RADOIR.
09 Nov2016
Invitation by EURORDIS for participating in Orphan Drug Congress 2016
This congress held in 16 November 2016 in Brussels (Belgium).
Following membership of Rare Diseases Foundation of Iran in Rare Diseases Europe and Rare Diseases International, Yann Lee Cam the CEO of Eurordis invited General Manager of Rare Diseases Foundation of Iran to orphan drug congress in Brussels.
07 Nov2016
International Day of rare diseases 2016
7th International Congress of Rare Diseases
- A Tribute to RARE DISEASE DAY
- February 28th 2016
- Venue: IRIB International Conference Center (IICC)