It was raised at the specialized meeting between Director General for NGOs and EURODIS delegation: Iran shall lead rare diseases societies in the Middle-East

Arrival of EURODIS delegation in Tehran on July 25th 2016

According to the Department for Public Relations of the Rare Diseases Foundation of Iran, in order to find out about therapeutic and research achievements made by the Foundation, EURODIS delegation arrived in Iran on July 25^th 2016. Explaining on this visit, Dr. Ali Davoudian, Managing Director of the Rare Diseases Foundation of Iran, stated that out of the major purposes behind the visit of the EURODIS delegation we need to refer to exchange views on different relevant issues as well as information and experiences of the two sides’ units that are rendering supportive and research services and to become familiarized with the achievements made by Iranian scientists in dealing with and treatment of rare diseases.

From the beginning of establishment, the Rare Disease Foundation of Iran was determined to form a complete Cultural-Educational complex with skilled and capable staff in order to reach its goals and giving better services.

Scientific meeting was held around Rare Diseases by presence of specialist from different countries at Esteghlal Hotel.

The meeting was held by efforts of the development and research section of the Rare Diseases Foundation of Iran. Specialists in the country and abroad in the field of genetics and Rare Diseases participated and gave speech about Rare Diseases Patients’ needs and problems.