The 1^st volume of “ Atlas of The Rare Diseases in Iran focused on the genetic and congenital diseases and disorders was published to share the knowledge and experiences by RADOIR’s experts and researchers with the world’s counterparts.

At a recent meeting of the Council of the International Society for Neonatal Screening, it was decided that the organization would present a plaque to Dr. Louis I Woolf recognizing his seminal contributions to the treatment of phenylketonuria, which made possible, and required the development of neonatal screening for maximum effectiveness.

Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to highlight the challenges people living with rare cancers face and to unify individuals living with rare cancers for awareness and early diagnosis.

Neurofibromatosis type 1 (NF-1) is a Neurocutaneous Syndrome with autosomal dominant mode of inheritance and has a high propensity to develop benign and malignant nervous system tumors.

 The head of transplant and treatment center of MOH-Iran announced,” There is possibility for accurate diagnosis of MPS patients population to receive further support from the government.”

The 4^th Iranian Alopecia Society Conference was held on Friday 19^th July, 2019 at Payam conference hall at the Ministry of Communications

On Wed. 17^th July, 2019, the second session for the Iranian strategic plan was held at Tehran University of Medical Sciences (TUMS).

A group of artist members from Miastenia Gravis society exhibited their paintings titled“Turquoise Flowers “ At Mehr-e-Honar Gallery.

Research Article By Dr. H. R. Edraki, RADOIR’s Managing Director: “ Fetal MRI in Early Diagnosis in Brain Disorders” Published By MRI International Book.