The 1st volume of “ Atlas of The Rare Diseases in Iran focused on the genetic and congenital diseases and disorders was published to share the knowledge and experiences by RADOIR’s experts and researchers with the world’s counterparts.
ISNS Would Present A Plaque to Dr. Louis I Woolf Recognizing His Seminal Contributions To The Treatment Of PHENYLKETONURIA.
NORD has announced a day devoted to raising awareness about rare cancers
Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to highlight the challenges people living with rare cancers face and to unify individuals living with rare cancers for awareness and early diagnosis.
How About The Revision of The Mammographic Screening Schedule In NF Patients?
Neurofibromatosis type 1 (NF-1) is a Neurocutaneous Syndrome with autosomal dominant mode of inheritance and has a high propensity to develop benign and malignant nervous system tumors.
MPS Genetic Map For The First Time In Iran
The head of transplant and treatment center of MOH-Iran announced,” There is possibility for accurate diagnosis of MPS patients population to receive further support from the government.”
4th Iranian Alopecia Society Conference Was held
The 4th Iranian Alopecia Society Conference was held on Friday 19th July, 2019 at Payam conference hall at the Ministry of Communications
The Second Session for The Iranian Strategic Plan For Rare Diseases & Orphan Drugs was held
On Wed. 17th July, 2019, the second session for the Iranian strategic plan was held at Tehran University of Medical Sciences (TUMS).
The Rare Artists of Miastenia Gravis Society at Mehr-e- Honar Gallery
A group of artist members from Miastenia Gravis society exhibited their paintings titled“Turquoise Flowers “ At Mehr-e-Honar Gallery.
Fetal MRI in Early Diagnosis in Brain Disorders” Published By MRI International Book.
Research Article By Dr. H. R. Edraki, RADOIR’s Managing Director: “ Fetal MRI in Early Diagnosis in Brain Disorders” Published By MRI International Book.