11 Mar2018
Rare Metabolic and Genetic Diseases symposium
Rare Diseases Foundation of Iran held a Rare Metabolic and Genetic Diseases symposium for one day on December 20, 2018, in collaboration with Tehran University of Medical Sciences in Tehran.
10 Feb2018
9th International Congress on the Occasion of Rare Diseases Day
Partnership of Rare Disease Patients is the focus of Rare Disease Day
Managing Director of Rare Diseases Foundation of Iran: This year the conference with slogan of “Partnership of Rare Disease Patients is the key factor for productive research on Rare Diseases” is a new chapter in collaborating with Rare Disease Patients to use their experiences in the research field.
20 Dec2017
Rare Diseases & Orphan Drugs
A General Strategic Review on Rare Diseases & Orphan Drugs
Joan Chambers
Senior Strategic Advisor
Rare diseases are generally defined as diseases that affect fewer than 200,000 people in the United States. Because rare diseases touch so few people, pharmaceutical companies traditionally did not pursue drug treatment for them. In addition, only a few types of rare diseases are tracked in the United States. That makes it more difficult to know exactly how many rare diseases exist and how many people have them.1 Treating these diseases has its own unique challenges, said Scott Schliebner, vice president of scientific affairs – rare diseases for PRA Health Sciences. Schliebner, considered an industry expert on this topic, is also a well-recognized speaker about rare diseases.
05 Dec2017