RADOIR NEWS _ A Memorandum of Understanding has countersigned by RADOIR and RareConnect during the 27^th Workshop for European Round Table of Companies.

The 2nd International Brain Mapping Symposium held in Tehran, 10-11 October 2018

RADOIR NEWS_ National Brain Mapping Laboratory held the 2^nd International Brain Mapping Updates Symposium in Tehran with presence of different national and international scientists. Dr. Hamidreza Edraki, Managing Director of RADOIR and Dr. Mehdi Norouzi, RADOIR’s Deputy of Research attended the event, accordingly.

RADOIR NEWS_ Dr. Maryam Imaniyeh, Dr. MohamadJavad Zarif’s wife, appointed as RADOIR ambassador of kindness.

A meeting session to call for rare patient’s support between Rare Diseases Foundation of Iran and Diplomatic Ladies Association was held on Wednesday 10^th October at RADOIR.

A memorandum of understanding signed by RADOIR and the Iranian short stature society on the provision of the clinical, para clinical and laboratory services to the association members.

The first panel of NBML was held on Friday 28^th September 2018 presenting innovative, functional imaging and screening methods about early diagnosis of the rare diseases.

At 13^th ICORD which was held on 20-21 Sep, 2018 in Stockholm-Sweden, RADOIR & EURORDIS signed partnership MOU for further mutual support of rare patients as a global approach.

RADOIR NEWS_ Rare Diseases Foundation of Iran (RADOIR) attended the 4^th international Pharmaceutical EXPO to call for orphan drugs for rare patients.

SABNA registry was established to electronically record the case of rare patients nationwide by Rare Diseases Foundation of Iran.

RADOIR NEWS_ Rare Diseases Foundation of Iran achieved one of its most prominent and outstanding goals at the time of the successor chairman, Mr. Yaser Davoudian and on the occasion of the 10th anniversary of its establishment.

“Is your Child growing normally? Find out! Because a child’s growth is a major sign of their health.”

ICOSEP ( International Coalition of Organizations Supporting Endocrine Patients) _ For decades there has been battle over misunderstanding that children’s growth is a cosmetic. It has been very frustrating as ICOSEP have helped to identify children with brain tumors, adrenal issues and much more who were failing and growth was a major symptom which was discounted. They  have made too much effort to raise the public awareness. The only reference resource book correlates to growth is compiled and is free to download: Click Here