General manager of Rare Diseases Foundation of Iran has traveled to Spain to remove obstacles on the way of delivering orphan drugs to Iran. “Vegal Farmaceutica” is a pharmaceutical laboratory that began operations in 1994. They are nowadays present in most foreign markets.
Support Package for Hard-to-Treat Diseases
The Health Ministry is preparing a support package for hard-to-treat diseases in the country.
Membership of EURORDIS and RDI
After Eurordis representatives visit to Iran and having several meetings with Rare Diseases Foundation of Iran in July 2016, a memorandum of understanding aims to more cooperation on improving life of patients with Rare Diseases signed between EURORDIS and RADOIR.
Rare Diseases Committee at UN
On the initiative of the Rare Disease Foundation of Iran and in collaboration with the Rare Diseases Europe (EURORDIS), a non-governmental patient-driven alliance of rare disease patient organizations, a rare diseases committee was established at the United Nations Headquarters in New York.
Visiting affected people by Professor Firousian
Patients with cancer had free of charge visit in Parsian Imaging Center, by Professor Firousian the Specialist in Internal Oncology and Blood Diseases.
Signing the Memorandum of Ankylosing Spondylistis patients Community
Rare Disease Foundation of Iran and A.S community signed a Memorandum of Understanding for more cooperation.
Sincere meeting between EURODIS representatives and families of rare diseases patients
The EURODIS high-ranking delegation met with families of rare disease patients on July 22nd2016 thanks to the arrangements by the Rare Diseases Foundation of Iran.
Free of charge medical high blood pressure check-ups and screening
Rare Diseases Foundation of Iran in cooperation with Tehran Municipality Health Department carried out free charge of high blood pressure medical check-ups and screening at Musa Ibn Jafar (pbuh) Mosque in Tehran.