From the beginning of establishment, the Rare Disease Foundation of Iran was determined to form a complete Cultural-Educational complex with skilled and capable staff in order to reach its goals and giving better services.

Acommittee for rare diseases will be set up at the Health Ministry to provide more efficient services to patients, said deputy health minister Mohammad Hadi Ayazi.

An amusement park in Hamedan Province was declared a “philanthropist park” by the Iranian Red Crescent Society for its initiative to serve children with rare and hard-to-treat diseases, including cancer, free of charge.

There are no exact statistics as to how many people currently suffer from rare diseases in Iran and reliable data must be produced under the supervision of the ministry of health, Hamed Asghari, social and cultural deputy of the Rare Diseases Foundation said.

Each year, the last day of February is internationally observed as the “Rare Disease Day”. It is intended to raise awareness about some of the most life-threatening or chronically debilitating diseases throughout the world. The Rare Diseases are of such low prevalence that special worldwide efforts are needed to effectively address this bullying challenge.