Screening is one of the most significant factors in prevention of non-communicable diseases as well as rare diseases.
5 Best Practices for Engaging with Patient Advocacy Groups
By Ed Miseta, Chief Editor, Clinical Leader
Patient recruitment has always been challenge for companies conducting clinical trials. Knowing how to properly engage with advocacy groups can determine whether they will treat you as a trusted partner or a necessary evil.
RADOIR and IUMS IN Scientific Collaboration
In order to expand scientific, training and research collaboration, exchanging facilities, information and data mining capacity, RADOIR and IUMS signed a collaborative partnership MOU on Monday Jan. 21, 2019.
RADOIR and TUMS Scientific in Collaborative Partnership
In order to establish R & D collaborative committee on the scientific research prioritizations for the rare patients’ needs, a meeting session was held together with RADOIR & TUMS authorities.
RADOIR & ROYAN Institute Begin Their Collaborative Partnership
Rare Diseases Foundation of Iran and ROYAN Institute held a meeting session on the means of scientific research collaboration in the field of rare diseases and genetic disorders on Wednesday 2nd Jan, 2019.
National Strategic Plan Complication for Rare Diseases by RADOIR
Health socialization & social responsibility on health care system is the main topic of discussions during Dr.Hashemi’s ministership which was completely changed through emphasizing on NGOs’ impressive role, accordingly.
Prenatal Gene Editing Shows Proof-of-concept in Treating Disease Before Birth
Using both CRISPR-Cas9 and base editor 3 (BE3) gene-editing tools, the team reduced cholesterol levels in healthy mice treated in utero by targeting a gene that regulates those levels. Also used prenatal gene editing to improve liver function and prevent neonatal death in a subgroup of mice that had been engineered with a mutation causing the lethal liver disease hereditary tyrosinemia type 1 (HT1).