General manager of Rare Diseases Foundation of Iran has traveled to Spain to remove obstacles on the way of delivering orphan drugs to Iran. “Vegal Farmaceutica” is a pharmaceutical laboratory that began operations in 1994. They are nowadays present in most foreign markets.
The Health Ministry is preparing a support package for hard-to-treat diseases in the country.
After Eurordis representatives visit to Iran and having several meetings with Rare Diseases Foundation of Iran in July 2016, a memorandum of understanding aims to more cooperation on improving life of patients with Rare Diseases signed between EURORDIS and RADOIR.
On the initiative of the Rare Disease Foundation of Iran and in collaboration with the Rare Diseases Europe (EURORDIS), a non-governmental patient-driven alliance of rare disease patient organizations, a rare diseases committee was established at the United Nations Headquarters in New York.
Patients with cancer had free of charge visit in Parsian Imaging Center, by Professor Firousian the Specialist in Internal Oncology and Blood Diseases.
Rare Disease Foundation of Iran and A.S community signed a Memorandum of Understanding for more cooperation.
Rare Diseases Foundation of Iran in cooperation with Tehran Municipality Health Department carried out free charge of high blood pressure medical check-ups and screening at Musa Ibn Jafar (pbuh) Mosque in Tehran.
This morning, Ms. Saeideh Mehdipoor, Director for Treatment of the Iran University of Medical Sciences and Health Services and Senior Inspector thereto visited different departments of the Rare Diseases Foundation of Iran.
Preparations for signature of the protocol on cooperation between Rare Diseases Foundation of Iran and Imam Khomeini (RA) Relief Committee
President of the Islamic Republic of Iran honoured Dr. Hamid Reza Adraki, prominent member of the Rare Diseases Foundation of Iran