RDOIR Deputies cordially hosted and met with its rare patients societies on Saturday 16th Feb., 2019

10th international congress on the occasion of Rare Disease Day by believing in the theme ‘’RARE but not ALONE!’’ in order to sympathy, supporting rare patients as well as presenting RADOIR’s lastest scientific, training and social achievements which will be held at Razi International Conference Center (RICC)on the March 2nd , 2019.

Screening is one of the most significant factors in prevention of non-communicable diseases as well as rare diseases.

In order to expand scientific, training and research collaboration, exchanging facilities, information and data mining capacity, RADOIR and IUMS signed a collaborative partnership MOU on Monday Jan. 21, 2019.

In order to establish R & D collaborative committee on the scientific research prioritizations for the rare patients’ needs, a meeting session was held together with RADOIR & TUMS authorities.

Rare Diseases Foundation of Iran and ROYAN Institute held a meeting session on the means of scientific research collaboration in the field of rare diseases and genetic disorders on Wednesday 2nd Jan, 2019.

Health socialization & social responsibility on health care system is the main topic of discussions during Dr.Hashemi’s ministership which was completely changed through emphasizing on NGOs’ impressive role, accordingly.

The 7th Scientific Conference of Hypothesis Diseases, Growth Hormone Disorder in children and Adults was held on 21 December 2018 by the scientific secretary, Dr. Mohammad Khamseh and the executive secretory, Dr. Mojtaba Malek from Endocrine and Metabolism Institute of Iran Medical Science University at Parsian Evin hotel, Kooh-e-Noor hall.

Rare Diseases Foundation of Iran as the First Non-governmental Organization Could Join ICOSEP (International Coalition of Organizations Supporting Endocrine Patients)

A Memorandum of Understanding has been countersigned between RADOIR and Medical Science Faculty of Tehran University for Research & Scientific collaboration