EURORDIS-Rare Diseases Europe has recently signed an agreement with the Rare Disease Foundation of Iran, a non-profit and non-governmental institution that provides services for rare disease patients and their community in Iran.

Rare Diseases Asia conference 2016, is held for 3 days from 27^th of Aban (17^th November) in Malaysia.

All rare diseases organizations from Asia and beyond participate in this event and Mr. Mehdi Mahkam attends as Rare Diseases Foundation of Iran representative.

New York, 11 November 2016 – The NGO Committee for Rare Diseases launches today at the United Nations headquarters in New York.

This congress held in 16 November 2016 in Brussels (Belgium).

Following membership of Rare Diseases Foundation of Iran in Rare Diseases Europe and Rare Diseases International, Yann Lee Cam the CEO of Eurordis invited General Manager of Rare Diseases Foundation of Iran to orphan drug congress in Brussels.

With collaboration between Rare Diseases Foundation of Iran and Rare Diseases Europe . Organizing Rare Diseases Committee in United Nations. Rare Diseases committee is formed by cooperation between Rare Diseases Europe and Iran.

Due to the report of Public Relations of Rare Disease Foundation of Iran, the first postmodern international conference held on Thursday by the presence of 700 university professors and eminent managers in IRIB amphitheater.

Dr. Ali Davoudian, Managing Director of Rare Diseases Foundation of Iran, met with Dr. Sameen Siddiqi, the WHO Representative in the Islamic Republic of Iran, in Tehran on Wednesday, September 21st 2016.

Scientific meeting was held around Rare Diseases by presence of specialist from different countries at Esteghlal Hotel.

The meeting was held by efforts of the development and research section of the Rare Diseases Foundation of Iran. Specialists in the country and abroad in the field of genetics and Rare Diseases participated and gave speech about Rare Diseases Patients’ needs and problems.