Dr. Ali Davoudian, the Founder and Managing Director of Rare Diseases Foundation of Iran, was born on 28th Jan 1959 in Bahnamir village located in Mazandaran province.
As he said all his siblings before him had died after their birth because of disease till his mother prayed for the healthy child to name him Darvish Ali.
Dr. Davoudian was the apple of his parents’ eyes and he gave spirit to their lives, then his mother asked him if he got wealthy spend all his money for patients.
Dr. Davoudian served in the health and treatment of the poor people after the revolution and along with the Beyt Ayatollah al-Ozma Golpayegani one of the Imitation authorities.
Dr. Davoudian’s young and middle-aged years were spent on charity, including the construction of schools, mosques, and hospitals in cooperation with other charities.
By seeing a child with a Rare disease (butterfly disease) in 2007 he was very affected and decided to establish a foundation to help these patients.
The Ministry of Health licensed the Rare Diseases Foundation, after exerting many efforts in 2008, and he provided free of charge services for Rare Disease Patients in Parsian Imaging and Medical Center at his own expense.
He celebrated the first year of the foundation activity by the presence of scholars and charitable, on 88/8/8 (30/oct/2009)
During these years, he had registed rare patients with Rare Diseases and tried to improve quality of their lives, supported about 50,000 rare disease patients and provided them Nader card ( to use free of charge services). There were 28 foundation-sponsored associations, of which 18 were rare diseases and 10 were chronic diseases.
Dr. Davoudian who was planning to expand the Foundation’s activities across the country, established the Foundation’s offices in various provinces, including Golestan, Fars, Kermanshah, Mazandaran, and West Azerbaijan. And also he opened specialized clinic for rare disease patients in Augest 2017.
Finally his efforts in international arena worked in 2016, and the Rare Disease Foundation of Iran became the official member of the Rare Diseases Europe and the official member of the United Nations Committee on Rare Diseases.
This great man passed away on the eve of the ninth year of the foundation’s activity. During his many years of service, had identified Rare (orphan) Diseases in Iran. But on the eve of the anniversary of the founding, this nine-year-old child is orphaned.
Dr. Ali Davoudian’s funeral will be from the Medical Imaging center of Parsian on 8th of Aban (coincided with the 9th anniversary of the founding of the Foundation) and buried on the holy threshold of Imam Zadeh Saleh (AS). Eight, This sacred number from birth to death was recorded forever in the life of Dr. Davoudian.
Dr. Davoudian you are not among us, but your memories will always be remembered. Your great soul deserves the highest level of paradise.
