Dr. Mahdi Shadnoush, the head of management center for transplantation and special diseases at the Iranian Ministry of Health had a meeting session in Dec.2019 about the status of rare patients at the Spanish Rare Diseases Research Institute in Spain as per the follow ups and arrangements done by Rare Diseases Foundation of Iran.
The meeting session on the status of rare patients was held in Madrid – Spain with the attendance of the Spanish authorities at IIER and Instituto de Salud Carlos III in Madrid and Dr. Shadnoush who presented a report about the impacts of sanctions as anti human rights action on the life quality of the Iranian rare patients. He added,” The rare patients and their families in the world have the same and common sense due to the hard sufferings caused by the rare diseases and the governments should not expose their life to the political and economical challenging confusions.”