RADOIR NEWS _ A Memorandum of Understanding has countersigned by RADOIR and RareConnect during the 27th Workshop for European Round Table of Companies.
The 27th ERTC took place on 16 oct. 2018 in Barcelona and RADOIR’s delegation participated as the sole rare patient organization from the Middle East. Rare Diseases Foundation of Iran as the NGO dedicated to the rare patients of the Iranian diseases communities and called for support of 70 pharmaceutical sponsor companies, attended the roundtable. RADOIR also presented the registry system of Iranian Patients SABNA (Strategic Analysis Bio-genetic Assessment) and call Rare Patients voices in Iran.
Regarding RareConnect translated into Persian by RADOIR’S International Affairs expert and informatics, the MOU signed for further innovative & technical collaborations on Wednesday 16th Oct., 2018.
RareConnect makes a bridge for rare patients to interactively communicate with others from different countries. There are 12 languages and patients can keep in touch with each other and share their personal stories via their mother tongue.
The network is included 160 diseases communities and it will be developed in case of any diagnosis of new rare diseases.