With collaboration between Rare Diseases Foundation of Iran and Rare Diseases Europe . Organizing Rare Diseases Committee in United Nations. Rare Diseases committee is formed by cooperation between Rare Diseases Europe and Iran.
For the official meeting of 63 Rare Diseases Organization representatives from all over the world, Rare Diseases Foundation of Iran participated as the only invited representative among 11 Persian language countries from Middle East. Participants of this meeting held today, 12th Aban 1395 corresponding to 2nd November 2016 in Paris were; Yan Lee Cam the Chairman Executive Officer of EURORDIS, Jean Louis Roux the secretary of Rare Diseases Committee in United Nations, Dr. Ali Davoudian the General Manager of Iran Rare Diseases Foundation, Dr. Mostafa Jamali the General Manager of NGOs from Ministry of Health, Treatment and Medical Education, also a group of experts and representatives from Sweden, Switzerland, Italy, Germany, Lvzambrk, Spain, England,…. At first, the existing capacity in the countries were considered to provide and facilitate social services for patients with Rare Diseases world-wide. Then, to refresh policies, access to the opinions of different countries, Capacity improving, increasing information and communicating via networks were discussed.
On the sidelines of this event, there was a private meeting between General Manager of Rare Diseases Foundation of Iran and Rare Diseases Europe committee secretary in United Nations and it was appointed Dr. Ali Davoudian as the forth speaker on the platform of United Nations for 11th November 2016.