Preparations for signature of the protocol on cooperation between Rare Diseases Foundation of Iran and Imam Khomeini (RA) Relief Committee
Representatives of the Rare Diseases Foundation of Iran and the Imam Khomeini (RA) Relief Committee held a meeting on June 20th 2106 and agreed to sign a protocol on mutual cooperation. Mr. Jafar Rahimi, Director General for Health, Treatment and Social Insurances of the Imam Khomeini (RA) Relief Committee stating that the Committee gives priority to the Rare Diseases Foundation of Iran for signing the said protocol added: “We wish to come to agreement with those centres that are rendering better services because improvement of patients’ living conditions supersede all else”.
Rahimi, emphasizing prevention of crisis and raising awareness on the coming threats, proposed the screening program as one the most important provisions of the protocol signed with the Foundation.
During the meeting Ms. Azar Esmaeili, Advisor for Women Affairs of the Imam Khomeini (RA) Relief Committee, emphasizing the need to further attend to the female heads of the household said: “The Relief committee covers 48% of the female heads of the household in Iran and in view of the fact that these people have to shoulder responsibilities of a father as well they usually neglect their own health accordingly”.
Esmaeili, addressing directors of the Rare Diseases Foundation of Iran, added: “I propose within our protocol, in addition to the services to be rendered in favour of all individuals covered by the Committee, we consider special health packages for women who are female heads of the household”. In conclusion Mr. Mohsen Sandani, Internal Manager of the Rare Diseases Foundation of Iran informed the participants of the efforts made by the Foundation for the formation of the “Group of Supporters of the Ill-affected People in the Islamic Community” and added: “We have invited 40 prominent benefactors for the formation of this group from different parts of the country and in this area we will attach the highest significance to the health sector”.
Referring to the free of charge services now being rendered to the rare disease patients by the Foundation Mr. Sandani called the Committee to extend its support for these patients in the matter of their livelihood as well.
It is to be mentioned that Pasian Imaging Centre affiliated to the Rare Diseases Foundation of Iran, enjoying skilled medical team comprising specialized medical staff and as well as advanced imaging equipment and devices, is rendering genetic disorder related services to the patients as well; the services that is not available in any other part of Iran.