At 13th ICORD which was held on 20-21 Sep, 2018 in Stockholm-Sweden, RADOIR & EURORDIS signed partnership MOU for further mutual support of rare patients as a global approach.
RADOIR NEWS- On Thursday 20th September 2018, Mr. Yaser Davoudian , RADOIR Chairman and Mr. Yann Le Cam, EURORDIS president signed MOU on their partnership for 5 years based on which they will collaborate on making solutions for assisting rare patients and their families with their sufferings and problems.
EURORDIS and RADOIR both recognize that rare diseases are a global public health challenge. Patients and families affected by rare diseases are living in all parts of world. Their goal is to support policies and practices that would speed up scientific discoveries and innovative treatments, provide access to the highest standard of diagnosis and care, offer high quality information, and help break the isolation of people living with very rare or extremely rare disease.
