RADOIR’s board of directors had a meeting session with Dr. Namaki, the minister of health on Monday April 15th, 2019 at MOH – Iran to present RADOIR’s 10 year activity report .
RADOIR NEWS- The board of Rare Diseases Foundation of Iran, Dr. Yaser Davoudian, the chairman and Dr. Hamid Reza Edraki, the Managing Director together with the parliament representative of Mazandaran province , Sardar Nanva Kenari joined an official meeting session with the minister of health , Dr. Namaki to appreciate the minister’s kind consideration on developing the strategic plan and vision for rare diseases which is going to be run with the mutual collaboration of Tehran University of Medical Sciences (TUMS) and RADOIR , orphan drugs supplying and provision and establishing a pharmacy specifically for the rare patients and their medication requirements.
The minister of health has asked his deputy at healthcare and treatment , Dr. Jan Babaie and Dr. Asadi Lari, International Affairs Deputy to make their most on running and following up the issues in order to rapidly cover the met and unmet needs of the rare patients of Iran.