International Day of rare diseases 2018

• A Tribute to RARE DISEASE DAY
• February 26^th 2017– IICC
• Venue: IRIB International Conference Center (IICC)

Theme of the congress:

•  “Rare patients’ collaboration, the key to the efficient research”

Objectives & Approaches:

• The Persian language submission on RareConnect
• Concluding the draft of collaboration agreement between RADOIR and the Ministry of Education
• Establishing the psychiatric counseling department for rare patients and their families at RADOIR
• Discussing problems and unmet needs of the rare patients with the attendance of the ministers of Education and Labor and Social Welfare