On Sunday 24th June, 2018, Dr. Seyed Mohammad Bathaie, the Minister of Education agreed: “We provide all facilities to promote school principal’s awareness through training courses on Rare Diseases via interactive networks.”
RADOIR News– During the meeting with Dr. Bathaie, the minister of education, he emphasized on raising students’ awareness about Rare Diseases. He also mentioned the weak points of the educational system in this regard: “Students must be trained how to behave and socialize with Rare Diseases Patients like EB. These patients should not be isolated from the society and left alone.Dr. Hamid Reza Edraki, the Managing Director of RADOIR, also stated: “When we seriously care for the educational subjects for promoting healthcare systems, we achieve better results with lower costs; definitely.” He added: “We at RADOIR have discovered a method to diagnose fetal Rare Diseases in Brain during the pregnancy. Now the training program at schools and acknowledging the families can be efficient solution to prevent rare diseases prevalence.”