One of the rare patients of Iran participated in the campaign of 2021 Rare Disease Day with the support of Rare Diseases Foundation.
RADOIR News- Upon the invitation by EURORDIS & RDI’s for the rare patients campaign of rare disease day heroes in 2021, we at RADOIR, introduce one of our rare teenagers, Reza Shirpoor, 13 years old with Cystinosis to join the campaign.
His portrait and life story have been disseminated in all the publicities of rare disease day. For further information about Reza’s story, you can try the link:
https://www.rarediseaseday.org/tell-your-story?disease=Cystinosis&country=104
On 26th February 2021, Rare Diseases Foundation of Iran held online celebration of rare disease day in Iran within 1 hour due to pandemic Covid-19. Rare Is Many… Rare Is Strong… Rare Is Proud!