The National Strategic Plan for Rare Diseases of Iran was approved at the Supreme Council of Health and Food Security leading by Dr. Saeed Namaki, the minister of health and medical education.
RADOIR News- The Iranian National Strategic Plan for Rare Diseases which was collaboratively developed by Rare Diseases Foundation of Iran (RADOIR), Tehran University of Medical Sciences (TUMS), the collaboration of local and international experts researchers and also with the immense support of the member of parliamentary health and treatment commission, Dr. M.A. Mohseni Bandpei as well as more than 70 members of the Iranian parliament, was certified and approved by the Supreme Council of Health &Food Security leading by Dr. Saeed Namaki, the minister of health and medical education of Iran.
The main and significant vision and mission of this national strategic plan is the prenatal screening to prevent with prompt diagnosis of the birth defects caused by the rare diseases and to solve the pharmaceutical and treatment problems of the rare patients in the country.
Dr. Hamid Reza Edraki, RADOIR’s managing director emphasized, “The main goal and objective of developing the strategic plan for rare diseases of Iran is to discover the treatment solutions and to alleviate the pain and suffering of the patients living with rare diseases and their families in Iran.” He also indicated that all the ministries and organizations in charge of educational, cultural and social approaches, will be notified as per the president of Islamic Republic of Iran, Dr. H.Rouhani, instruction.