Reading the script of “Mermaid Story” by the aim of sympathy and companionship with Rare Disease Patients. It will be performed by artists, Rare Diseases Foundation of Iran’s ambassadors, in “Gholhak Cinema Complex” on Sunday at 17:00.
Inauguration of “ Tabibe Man (My Doctor)” Health Club in ”Tochal”
“ Tabibe Man” the Health Club has opened since June 27th in “Tochal” tourism and recreational region in Tehran. The club has been launched in partnership with Rare Diseases Foundation of Iran, “Aramesh” Clinic, ”Parsian“ Medical & Imaging Center, “Tabibe Man” Media Base, Tehran Emergency Center and “Tochal “ sport, recreational and cultural complex.
The Iranian community for Rare Disease Patients in Liechtenstein.
Dr. Ali Davoudian has registered Iranian advocacy community for Rare Diseases Patient in Liechtenstein in line with the goals of Rare Diseases Foundation of Iran.
The first meeting b/w the Iranian rare diseases societies and Director General for NGOs
Organization of the first meeting between the Iranian rare diseases societies and Director General for NGOs of the Ministry of Health and Medical Education of the I.R. Iran on July 2nd 2017 with the purpose of discussing pharmaceutical, economic and social problems facing rare disease patients.
Int’l Conference to Debate Challenges of Rare Diseases
The 8th International Rare Disease Day conference on February 26 with the slogan “Rare Disorders Without Borders,” aims to raise awareness on rare diseases across the world, and the medical and social challenges in the field.
PGD for Genetic Diseases
Annually, more than 30,000 babies with congenital disorders are born in the country while in at least 20,000 cases the problem can be prevented or solved through premarital and prenatal genetic counseling, said Dr Saeed Reza Ghaffari, genetic expert and a board member of Avicenna Infertility Research and Treatment Center.
Sweden inclination for investing on Iranian Rare Diseases Patients
A meeting held between the Managing Director of Rare Diseases Foundation of Iran and Iran-Scandinavia chamber of commerce president for cooperation, fundraising and also Sweden investing in Iran.
80 thousand of Iranian population is affected by MS
The president of Iranian Neuroscience Association pointed out, vitamin D deficiency, changes in the climate and genetics are effective in the development of MS, he also said:” 80 thousand people in Iran are suffering from this disease.”
Life Expectancy in Iran
WHO: Life expectancy in Iran has risen up to 73 by health promotion
According to WHO report about the health situation in Iran, a decrease in the rate of maternal mortality leads to becoming the third successful country in this field.
Specialty and Subspecialty clinic for Rare Diseases
Specialty and Subspecialty clinic for Rare Diseases will be opened
Specialty and Subspecialty clinic of Rare Diseases Foundation of Iran will start working in late May.