RP Society started its activities in 2000 thank to the efforts extended by a number of charity donors, physicians, and other interested individuals. This society was registered in 2001 and its activities entered a new and more serious phase.

The license for psychological and counseling center for rare diseases patients has been issued recently.

The Psychological and Counseling Organization of the Islamic Republic of Iran (PCO) issued a license for the establishment of a psychological and counseling center for Rare Diseases Foundation of Iran.

The report from healing prescriptions for Ramadan has just released.

25 patients affected by Rare Diseases were identified in MRI section

Dr. Hamid Reza Edraki, the member of the scientific committee for Rare Diseases Foundation of Iran, announced the report from healing prescriptions plan. According to the report, 25 patients affected by rare diseases, 73 patients with congenital disorders, and 85 patients with MS were identified through healing prescriptions for Ramadan.

Members of the Scientific Deputy of Rare Diseases Foundation of Iran were determined.

Members of the scientific deputy have been determined in order to reach scientific, educational, preventive and therapeutic goals because of Rare Diseases Patients.

The college of the Rare Diseases Foundation of Iran is going to start its activities since October.

Getting started the establishment of another branch for Rare Diseases Foundation of Iran in Golestan Province

During his trip to Golestan, Dr. Ali Davoudian has visited the head of Medical Sciences University and negotiated in order to establish a branch for Rare Diseases Foundation of Iran in Golestan province.

The 12th Annual ICORD Conference and the 6th China Rare Disease Summit will be held in Beijing, China, on September 7~10, 2017, which is organized by the International Conference on Rare Disease and Orphan Drugs (ICORD), Chinese Organization for Rare Disorders (CORD) and Peking Union Medical College Hospital (PUMCH).

Over 3,000 rare disease voices across Europe responded to the survey.

The survey was conducted via Rare Barometer Voices (a community of over 5,000 people living with a rare disease who regularly participate in EURORDIS surveys) in 23 languages across 42 countries.

Reading the script of “Mermaid Story” by the aim of sympathy and companionship with Rare Disease Patients. It will be performed by artists, Rare Diseases Foundation of Iran’s ambassadors, in “Gholhak Cinema Complex” on Sunday at 17:00.

“ Tabibe Man” the Health Club has opened since June 27^th  in “Tochal” tourism and recreational region in Tehran. The club has been launched in partnership with Rare Diseases Foundation of Iran, “Aramesh” Clinic, ”Parsian“ Medical & Imaging Center, “Tabibe Man” Media Base, Tehran Emergency Center and “Tochal “ sport, recreational and cultural complex.