The Coeliac Society is considered as the first national, scientific and supportive society that has been established in Iran (2001) belonging to the Coeliac affected patients. This society is the first supportive and scientific NGO at the national level in Iran with its main office in Isfahan. It is worth mentioning that thank to the untiring efforts by a number of professors, researchers and charity donors this society was officially registered with the concerned bodies in 2004.
Ichthyosis Society of Iran is a non-governmental body with 400 members. This society is supposed to presently start its activities in the medical and social areas with the assistance provided by a number of physicians and patients. The idea for the establishment of this society sparked in 2012 and members of its founding board were elected in 2016.02.27. This society is the relevant confirmation code issued by the Interior Ministry and its registration process is yet to be concluded accordingly.
Neurofibromatosis is a genetic disease that affects nerves and the skin. In Neurofibromatosis benign and non-cancerous tumors grow across the nerve fibers and such a growth will lead to emergence of some disorders in the skin and bones.
Primary Immunodeficiency Charitable Society
Her Eminence Sedighe Tahere Fatimeh (S) Primary Immunodeficiency Charitable Society was established in Isfahan Province.
Primary immunodeficiency is a disease that is caused by a deficiency in the immune system of the human organs (cells and proteins) as the result of which the affected organs can no more stand against infections caused by bacteria, parasites, and viruses.
Cerebral Palsy Society
Cerebral Palsy Support Society was established by late Ms. Eftekharolmalek Homayun and a number of other caring individuals rendering its services in form of supportive measures. Presently this society is managed by Mr. Morteza Khatibiyan.
Lupus Society was established in 2010 in view of the efforts done by Dr. Mahmoud Akbarian (Rheumatologist) with the purpose of supporting the Lupus affected patients.
Phenylketonuria Society was established in Iran more than 15 years ago thank to all the efforts done by a number of parents of the affected individuals, physicians, as well as subspecialists in endocrinology and metabolism, genetics, Brain, pediatric neurology, biochemistry and laboratory sciences rendering its services and supporting the Phenylketonuria affected individuals and their families.
Cystinosis is a metabolic disease that is characterized by the abnormal accumulation of the amino acid cystine in different organs like kidneys, eyes, muscles, pancreas, and brain. Accumulation of cystine in the body cells will cause disorder in the function of the organs.
This Society comprising members of the board of directors and a rheumatologist started its activity in 1990 and it received its official permit from the Interior Ministry in 1993.
The Dystrophy Society that intends to extend all out support for the patients affected by dystrophy disorder received its permit in 2006 after three years of untiring efforts. The first plenary meeting of this society took place in May 2007 officially starting its activities as of the mentioned date.