The first NF Conference was held on last Thursday hosting NF patients and members, social and scientific patient supporters and advocates.

The first session for developing strategic plan for rare diseases of Iran was held at TUMS headquarters office on last Sunday 16th June, 2019 with the presence of Dr. M.A. Sahraiean the scientific research deputy of TUMS, , Dr. Mahdi Norouzi, the scientific research deputy of RADOIR, Dr. Shamshiri, Epidemologist, Dr. Shadab Salehpour, pediatric endocrinologist, Prof. D. Farhoud, the father of genetic science of Iranand Dr. Siyamak Abdi, neurologist and Dr. H. R. Edraki, RADOIR managing director who is the core member to develop the national strategic plan for rare diseases in Iran.

World Rare Disease 2019 Scientific Committee will be honored to welcome you to attend the 2nd World Congress on Rare Diseases to be held during November 28-29, 2019 at Helsinki, Finland with the theme “Hope: The Best Therapy for Rare Diseases”.

https://rarediseases.infectiousconferences.com

https://www.mcascientificevents.eu/iccn/

http://2019.worldneonatology.com

Rare Diseases Foundation of Iran was approved as associate member at the International Society for Neonatal Screening

Rare Diseases Foundation of Iran was approved as affiliate member at the Cancer Epigenetics Society (CES)

http://radoir.org/en/wp-content/uploads/2019/04/Preliminary-Program-ISPD-2019.pdf