World Rare Disease 2019 Scientific Committee will be honored to welcome you to attend the 2nd World Congress on Rare Diseases to be held during November 28-29, 2019 at Helsinki, Finland with the theme “Hope: The Best Therapy for Rare Diseases”.
24 Oct2018
RADOIR at ICORD on 20th -21st Sep. 2018, Sweden- Stockholm
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals. The mission of ICORD is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness. One of the main activities of ICORD is the organisation of the ICORD annual meetings, which have been successfully arranged ten times all over the world.
16 Oct2018
RADOIR at The 2nd International Brain Mapping Symposium
The 2nd International Brain Mapping Symposium held in Tehran, 10-11 October 2018
RADOIR NEWS_ National Brain Mapping Laboratory held the 2nd International Brain Mapping Updates Symposium in Tehran with presence of different national and international scientists. Dr. Hamidreza Edraki, Managing Director of RADOIR and Dr. Mehdi Norouzi, RADOIR’s Deputy of Research attended the event, accordingly.
08 Jul2018
European Conference on Rare Diseases & Orphan Products
ECRD – the European Conference on Rare Diseases & Orphan Products was the largest multi-stakeholder gathering in Europe for the rare disease community covering research, development of new treatments, healthcare, social care, public health policies and support at European, national, regional and international levels.
27 Jun2018
Upcoming EURORDIS events
October 2018
27th EURORDIS Round Table of Companies Workshop
16 October, Barcelona. “Patient engagement in the product life-cycle and community advisory boards (CAB)” More information.
December 2018
EURORDIS Council of National Alliances (CNA) meeting
10 – 11 December, Paris. For members of the CNA only. For more information please email anja.helm@eurordis.org.
EURORDIS Council of European Rare Disease Federations (CEF) meeting
11 – 12 December, Paris. For members of the CEF only. For more information please email anja.helm@eurordis.org.
February 2019
EURORDIS Black Pearl Awards
12 February, Brussels More information
March 2019
EURORDIS Winter School
11 – 14 March, Paris Applications will open here in the coming months.
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