On the initiative of the Rare Disease Foundation of Iran and in collaboration with the Rare Diseases Europe (EURORDIS), a non-governmental patient-driven alliance of rare disease patient organizations, a rare diseases committee was established at the United Nations Headquarters in New York.
Patients with cancer had free of charge visit in Parsian Imaging Center, by Professor Firousian the Specialist in Internal Oncology and Blood Diseases.
Rare Disease Foundation of Iran and A.S community signed a Memorandum of Understanding for more cooperation.
The EURODIS high-ranking delegation met with families of rare disease patients on July 22nd2016 thanks to the arrangements by the Rare Diseases Foundation of Iran.
Rare Diseases Foundation of Iran in cooperation with Tehran Municipality Health Department carried out free charge of high blood pressure medical check-ups and screening at Musa Ibn Jafar (pbuh) Mosque in Tehran.
This morning, Ms. Saeideh Mehdipoor, Director for Treatment of the Iran University of Medical Sciences and Health Services and Senior Inspector thereto visited different departments of the Rare Diseases Foundation of Iran.
Preparations for signature of the protocol on cooperation between Rare Diseases Foundation of Iran and Imam Khomeini (RA) Relief Committee
President of the Islamic Republic of Iran honoured Dr. Hamid Reza Adraki, prominent member of the Rare Diseases Foundation of Iran
A protocol was signed between Rare Diseases Foundation of Iran and EURODIS on July 30th 2016
It was raised at the specialized meeting between Director General for NGOs and EURODIS delegation: Iran shall lead rare diseases societies in the Middle-East