Normal Findings in MRI and CT
The honor of Rare Diseases Foundation of Iran
The present book, Normal Findings in MRI and CT, has been collected and translated by Dr. HamidReza Edraki, the assistant professor and member of faculty in Shahid Beheshti Medical of Science University and also the Managing Director of Rare Diseases Foundation of Iran. It is published by Shahid Beheshti Medical of Science University. The book compares normal and abnormal findings in MRI and Ct scan. It is including 230 pages with 7 sections consist of MRI and CT scan from head, neck, abdomen, pelvis, spin, joint, vessels and etc. It is one of the university exam references for MA and PhD. The book has been ranked as the top 10 books of the year for the International Book Fair.
The English version of the book is available, here.Orphan Drugs
Journal Rare Disorders: Diagnosis & Therapy
The Journal Rare Disorders: Diagnosis & Therapy is an open access Scientific Journal which mainly focuses on articles of rare and chronically debilitating diseases. The Journal Rare Disorders: Diagnosis & Therapy comes up with an opportunity to researchers and scientist to explore rare diseases and their therapies. The Journal Rare Disorders: Diagnosis & Therapy is of highest standards in terms of quality.
Implementing and Evaluating Genomic Screening Programs in Health Care Systems
National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Sciences Policy; Roundtable on Genomics and Precision Health.National Academies (US); 2018 Mar 16.
A population-based registry as a source of health indicators for rare diseases
The burden of rare cancers in Italy
A rare look
Safir Salamat
After successful publication of the “Nedaye Nader (Voice of Rare) ” specialized magazine with the rare diseases as its main theme the Foundation, in line with its social mandate in promoting the health quality in different social communities, attempted to publish the “Safire Salamat ) Messenger of Health)” monthly magazine.
Atlas of rare diseases
Low prevalence of rare diseases has caused very limited studies done in this area. On the other hand the hereditary nature of these diseases has added more difficulties and complexity lowering the pace for identification of their causes and roots and accordingly their diagnosis and treatment.