After successful publication of the “Nedaye Nader (Voice of Rare) ” specialized magazine with the rare diseases as its main theme the Foundation, in line with its social mandate in promoting the health quality in different social communities, attempted to publish the “Safire Salamat ) Messenger of Health)” monthly magazine.
Low prevalence of rare diseases has caused very limited studies done in this area. On the other hand the hereditary nature of these diseases has added more difficulties and complexity lowering the pace for identification of their causes and roots and accordingly their diagnosis and treatment.
The report from healing prescriptions for Ramadan has just released.
25 patients affected by Rare Diseases were identified in MRI section
Dr. Hamid Reza Edraki, the member of the scientific committee for Rare Diseases Foundation of Iran, announced the report from healing prescriptions plan. According to the report, 25 patients affected by rare diseases, 73 patients with congenital disorders, and 85 patients with MS were identified through healing prescriptions for Ramadan.