“ Tabibe Man” the Health Club has opened since June 27th in “Tochal” tourism and recreational region in Tehran. The club has been launched in partnership with Rare Diseases Foundation of Iran, “Aramesh” Clinic, ”Parsian“ Medical & Imaging Center, “Tabibe Man” Media Base, Tehran Emergency Center and “Tochal “ sport, recreational and cultural complex.
Dr. Ali Davoudian has registered Iranian advocacy community for Rare Diseases Patient in Liechtenstein in line with the goals of Rare Diseases Foundation of Iran.
Organization of the first meeting between the Iranian rare diseases societies and Director General for NGOs of the Ministry of Health and Medical Education of the I.R. Iran on July 2nd 2017 with the purpose of discussing pharmaceutical, economic and social problems facing rare disease patients.
The 8th International Rare Disease Day conference on February 26 with the slogan “Rare Disorders Without Borders,” aims to raise awareness on rare diseases across the world, and the medical and social challenges in the field.
Annually, more than 30,000 babies with congenital disorders are born in the country while in at least 20,000 cases the problem can be prevented or solved through premarital and prenatal genetic counseling, said Dr Saeed Reza Ghaffari, genetic expert and a board member of Avicenna Infertility Research and Treatment Center.
A meeting held between the Managing Director of Rare Diseases Foundation of Iran and Iran-Scandinavia chamber of commerce president for cooperation, fundraising and also Sweden investing in Iran.
Specialty and Subspecialty clinic of Rare Diseases Foundation of Iran will start working in late May.
The Flag of the foundation was raised on the heights of Africa by Mohammad Hajipour the Ambassador of Rare Diseases Foundation of Iran.
Rare Diseases Associations came together by the help of the Rare Diseases Foundation of Iran on the occasion of the 8th international congress of Rare Disease Day and they shared their problems with authorities in the field of health care.
As a member of the EURORDIS delegation, I was invited to participate in the Rare Disease Foundation of Iran’s 8th International Congress on the occasion of Rare Disease Day.