There are 1.2 million people in Iran living with some type of a rare disease, said Dr. Ali Davoudian, founder of the Rare Disease Foundation of Iran (RADOIR).

On the occasion of World Rare Diseases Day (marked globally on the last day of February), the Rare Diseases Foundation of Iran (RADOIR) is holding an essay writing contest for students across all schools in Tehran Province.

here are presently 620 NGOs in the country working under the supervision of the Health Ministry, said Mostafa Jamali, head of the ministry’s Non-Governmental Organizations Office, on Sunday.

Research lesson added to the lessons for students who are studying at Dana school, affiliated to Rare Diseases Foundation of Iran.

General manager of Rare Diseases Foundation of Iran has traveled to Spain to remove obstacles on the way of delivering orphan drugs to Iran. “Vegal Farmaceutica” is a pharmaceutical laboratory that began operations in 1994. They are nowadays present in most foreign markets.

The Health Ministry is preparing a support package for hard-to-treat diseases in the country.

After Eurordis representatives visit to Iran and having several meetings with Rare Diseases Foundation of Iran in July 2016, a memorandum of understanding aims to more cooperation on improving life of patients with Rare Diseases signed between EURORDIS and RADOIR.

On the initiative of the Rare Disease Foundation of Iran and in collaboration with the Rare Diseases Europe (EURORDIS), a non-governmental patient-driven alliance of rare disease patient organizations, a rare diseases committee was established at the United Nations Headquarters in New York.

Patients with cancer had free of charge visit in Parsian Imaging Center, by Professor Firousian the Specialist in Internal Oncology and Blood Diseases.

Rare Disease Foundation of Iran and A.S community signed a Memorandum of Understanding for more cooperation.