Annually, more than 30,000 babies with congenital disorders are born in the country while in at least 20,000 cases the problem can be prevented or solved through premarital and prenatal genetic counseling, said Dr Saeed Reza Ghaffari, genetic expert and a board member of Avicenna Infertility Research and Treatment Center.
A meeting held between the Managing Director of Rare Diseases Foundation of Iran and Iran-Scandinavia chamber of commerce president for cooperation, fundraising and also Sweden investing in Iran.
Specialty and Subspecialty clinic of Rare Diseases Foundation of Iran will start working in late May.
The Flag of the foundation was raised on the heights of Africa by Mohammad Hajipour the Ambassador of Rare Diseases Foundation of Iran.
Rare Diseases Associations came together by the help of the Rare Diseases Foundation of Iran on the occasion of the 8th international congress of Rare Disease Day and they shared their problems with authorities in the field of health care.
As a member of the EURORDIS delegation, I was invited to participate in the Rare Disease Foundation of Iran’s 8th International Congress on the occasion of Rare Disease Day.
There are 1.2 million people in Iran living with some type of a rare disease, said Dr. Ali Davoudian, founder of the Rare Disease Foundation of Iran (RADOIR).
On the occasion of World Rare Diseases Day (marked globally on the last day of February), the Rare Diseases Foundation of Iran (RADOIR) is holding an essay writing contest for students across all schools in Tehran Province.
here are presently 620 NGOs in the country working under the supervision of the Health Ministry, said Mostafa Jamali, head of the ministry’s Non-Governmental Organizations Office, on Sunday.
Research lesson added to the lessons for students who are studying at Dana school, affiliated to Rare Diseases Foundation of Iran.